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Links
The Interstitial Cystitis Association (ICA): [ website ]
This site is dedicated to patients with IC and offers one of the best sites to find comprehensive information about the disease. No ICer should leave home without this one!
The Interstitial Cystitis Network (ICN): [ website ]
This site too, is dedicated to patients with IC, offering comprehensive information no patient should live without. This site also operates a vast message board that I encourage everyone to at least visit, if not sign up to participate (it's free!). These message boards will connect you with patients from all around the world!
Medline Plus : [ website ]
(A service of the U.S. National Library of Medicine and the National Institute of Health (NIH))
This site offers comprehensive information about IC demonstrated in a straightforward, simplified manner and drawn from various sources. This is a good starter site for newly diagnosed patients.
UrologyHealth.org: [ website ]
(American Urological Association)
This site offers valuable information about interstitial cystitis, connects patients with current ongoing clinical trials, and can also connect patients with urologists is their area. Not all urologists are created equal when it comes to the diagnosis and treatment of IC. I recommend that each patient contact the urologist they select from this resource and question their expertise in treating IC.
National Institute of Diabetes , Digestive & Kidney Diseases (NIDDK): [ website ]
The NIDDK, a division of the National Institute of Health (NIH), supports basic and clinical research through investigator-initiated grants, program project and center grants, and career development and training awards. The Institute also supports research and development projects and large-scale clinical trials through contracts.
International Painful Bladder Foundation: [ website ]
The IPBF is a non-profit voluntary organization which promotes knowledge and awareness of painful bladder syndrome (PBS), interstitial cystitis (IC), chronic pelvic pain syndrome (CPPS), overactive bladder (OAB), incontinence and associated disorders among patients, patient support groups, health professionals and the general public worldwide
s an independent, nonbiased site where you can not only view the rates the effectiveness of various treatments for specific health problems (in this case, IC).
PubMed.gov (National Library of Medicine): [ website ]
This site is a service of the National Library of Medicine where you can review all the most up to date IC research published throughout the world. Just type "Interstitial Cystitis" in the search field and all research that has been submitted from the earliest days to most recent times will be displayed.
Pillbot.com: [ website ]
Want to find the best price for your prescription? This site offers patients the easiest way to comparison shop without leaving home! Just enter the prescription name and let Pillbot do the rest.
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